NOFAS Update August 26. 2013

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FEATURES

 

Emily Oster

Emily Oster Responds to NOFAS NOFAS is very critical of Emily Oster’s new book, which encourages pregnant women to drink wine. Oster responded directly to NOFAS, writing, “Telling women that an occasional glass of wine is more harmful to their baby than heroin or cocaine is misleading and may also be potentially dangerous. It surely would not be supported by the vast majority of the medical establishment. Focusing on punishing and shaming women who choose to have an occasional glass of wine during their pregnancy also takes away important focus from helping women who are struggling with truly problematic drinking and the social problems that often come with it.”

 

Read the response from MOFAS and March of Dimes.

 

Take Action: Leave an Amazon Review of Emily Oster’s Book.

 

 

Community

FASD PSA with Dr. Kenneth Lyons Jones This short PSA video is produced by MotherToBaby, a service of the?Organization of Teratology Information Specialists (OTIS). The video features Dr. Kenneth Lyons Jones, who discovered FAS in 1973.

Justice System Must Address FASD, says Professor “Speaking during a session at the Canadian Bar Association annual conference Monday in Saskatoon, Glen Luther said recognizing and dealing with FASD in the court system is key to helping those offenders change their behavior… People in the justice system who suffer from FASD - and the related but less well-known alcohol-related neurodevelopmental disorder - require innovative programs developed through co-operation among the justice, health and social services departments.” From Leader-Post.

 

Ohio FASD Day Resolution This resolution from the Governor of Ohio states, “WHEREAS, FASD is entirely preventable and no amount of alcohol is safe to consume for a pregnant or nursing mother. NOW, THEREFORE, I, John R. Kasich, Governor of the State of Ohio, do hereby recognize September 2013 as FASD Awareness and Prevention Month throughout Ohio and encourage expectant mothers to combat the ills of FASD by remembering that during the nine months of pregnancy a woman should abstain from all alcohol.”

 

Research

Canadian Children and Youth in Care: The Cost of FASD The study concludes, “The study findings can be used to demonstrate the substantial economic burden that FASD places on the child welfare system. Attention towards the needs of this population and prevention efforts to reduce FASD incidence in Canada, and other countries are urgently needed.”

 

NIH Study Finds Chronic Alcohol Use Shifts Brain’s Control of Behavior “Chronic alcohol exposure leads to brain adaptations that shift behavior control away from an area of the brain involved in complex decision-making and toward a region associated with habit formation, according to a new study conducted in mice by scientists at the National Institutes of Health.”

 

Events

Webinar: Creating Resiliency in Families Living with FASD: Moving from Grief to Empowerment September 4, 2013. 2:00 PM – 3:00 PM EST. Kathy Mitchell, Vice President and National Spokesperson for NOFAS “will review some of the behavioral characteristics of individuals with FASD through the lifespan and discuss how families are also affected through the lifespan. She will review the stages of denial and grief often experienced by family members and will focus on the importance of self-care for parents and caretakers.”

 

Webinar: Beyond the Diagnosis: Effective Interventions for Children and Adolescents with FASD September 9, 2013. 2:00 PM – 3:30 Pm EST. “This presentation will share the latest research on FASD interventions, as well as practical parenting and teaching tips learned from families and research colleagues. This will include information on early intervention, practical sleep/feeding/sensory strategies, positive behavior supports, help for self-regulation and executive functions, medications, educational approaches, and adolescent transitions.”

 

. 10th at 10:00 am PDT. “The purpose of this telesummit is to provide families with information about practical strategies to implement at home, based on the newest FASD research. Speakers have been specially selected because they have experience on a professional level and also have first-hand experience raising children with FASD.”

 

Conference for Adults with FASD August 29 - September 1, 2013. Liberty Center, Ohio. Registration and payment due July 15. “The 2013 FASD Conference is a weekend learning about FASD, building skills to live better with FASD, and most important - making lifelong friendships with other individuals with FASD.”

 

CEU Training for Professionals by Dr. Patrick Carnes - Understanding Addiction Interaction, Treatment and Recovery September 6, 2013. Bethesda, MD. “This presentation will address the “Black Hole” of Addiction Interaction and the different types of addictions; substances, process, core affect states, and relationships and how they engage the main addiction neuro-pathways of arousal/pleasure, disassociation/fantasy/escape, numbing/satiation, and deprivation… This event is intended for clinical professionals.”

 

NOFAS Fundraiser: International Gala & Maternity Fashion Show September 12, 2013. “Smart Moms, Healthy Babies” International Gala celebration of mothers and maternity fashions at the Embassy of Italy in Washington, D.C. Guests from Congressional and diplomatic delegations will join corporate leaders and other public and private sector guests for a reception, silent auction, dinner and parade of maternity fashions and musical entertainment. The event will cap the week of activities related to International FASD Awareness Day (September 9 annually).

 

Michigan FASD Task Force Conference September 12, 2013. Ann Arbor, Michigan. “Please join us in commemorating the 40th anniversary of the first article to describe Fetal Alcohol Syndrome co-authored by our Keynote Speaker: Kenneth Lyons Jones, MD, University of California, San Diego. Additional Speakers Include: Mark A. Sloane, DO, Children’s Trauma Assessment Center, Western Michigan University. Sally Burton-Hoyle, Ph.D., Autism Collaborative Center, Eastern Michigan University. Dan Dubovsky, MSW, LSW, Substance Abuse and Mental Health Services Administration, FASD Center for Excellence.”

 

Conference on Legal Issues of FASD September 18 - 20. Edmonton, Alberta, Canada. “This conference is a three-day juried hearing of evidence and scientific findings that allows for the engagement and collaboration of citizens and decision makers in government and the justice system in addressing a specific set of key questions on legal issues related to FASD.”

 

First International Conference on Prevention of FASD September 23-25, 2013. Edmonton, Alberta, Canada. “This is the first international conference to address the primary, secondary and tertiary prevention of FASD… The conference will serve as an international knowledge exchange and networking forum for those interested in FASD prevention, bringing together key experts from around the globe.”

 

40th Anniversary FASD Summit Sept 26-27,2013. Atlantic City, NJ. Opening keynote is Dr. Ken Jones. Other speakers include: Drs. Luther Robinson, Grace Chang, Jennifer Thomas, Claire Coles and Natalie Novick-Brown. Kathy Mitchell is the moderator for a family panel.

 

Balancing the Scales of Justice for Children and Adults with Disabilities October 10-11, 2013. Denver, CO. “The Conference"s primary target audience is individuals who work in disciplines that investigate and prosecute crimes against children and adults with intellectual and developmental disabilities (I/DD), as well as those who support those victims.”