NOFAS Weekly Roundup June 22, 2015

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NEW AT NOFAS   June 22, 2015  
   
Free NOFAS Webinar:
Daniel Dubovsky: The Interface of FASD and Co-Occurring Issues:
Essential Considerations"

WED, June 24  |  2:00-3:00 pm ET  
 

The webinar will be presented by Daniel Dubovsky, MSW, LSW, FASD Specialist  

Many individuals with an FASD have co-occurring mental health and other issues.

It is very important to distinguish whether a person has a true co-occurring mental health issue or whether the behaviors are due to the brain damage due to FASD. Even if a person with an FASD has a co-occurring mental health disorder, the treatment for that disorder must be modified to effect positive outcomes.

This presentation will identify mental health issues in individuals with FASD, discuss why those with FASD have to be approached differently in education, treatment, home, and other settings, and will examine strategies geared to the recognition of what is causing the behaviors that we see.

REGISTER NOW 
 
   
NOFAS Hosts Affiliate Meeting, Honors Leading Family and Advocate

NOFAS held its annual Affiliate Summit last week in Washington, D.C. to expand collaboration on FASD initiatives and to discuss the coalition’s priorities for the coming year.

While in town, affiliate representatives joined Washington, D.C. area families and advocates for a reception at the Embassy of Italy. Over 100 guests attended a pizza party on the Embassy’s patio celebrating NOFAS honorees, Mark, Cathy, and Taylor Allen, and Jeanne Mahoney.

 
   

FASD NEWS

 
British Medical Association Says Pregnant Women Should Not Drink Any Alcohol

“Women should not drink any alcohol during pregnancy, the British Medical Association will say at its annual conference this week. Professor Sir Al Aynsley Green, president of the BMA, called for stricter Government advice and “more explicit” warnings of the risks to the baby on bottles and cans.”
– The Telegraph

british_medical_says
 
Couple Frustrated by Lack of FASD
Disclosure in Adoption Aren't Alone

“Susan and Bill Smith… [said] that they didn't find out the two girls they adopted had FASD until after the process was complete.  The story, which was published on Monday, spurred feedback from families who say they've gone through a similar experience.  A Calgary woman… [says] she and her husband told social workers they were willing to take on kids with disabilities but were not up to the challenge of teenagers with FASD.”
– CBC News

Related story:
Canadian leader David Swann says better screening
for FASD needed before adoption

 adoption_alcohol-and-pregnancy 
 
Adopted Daughter with FASD
Shares Her Struggles

This article contains a letter written by 15-year old girl.  Her adoptive parents say they found out late in the process that she, along with her sister, had fetal alcohol syndrome.
– CBC News

girl_story_fasd-adoption-in-alberta
 
FASD in South Africa: Profile of Families

This in-depth article profiles several families living with FASD, including 11-year old Smallie.  “When Smallie started school, he rarely stayed in the classroom. While teachers were teaching, he would run outside to climb trees or play on the school’s rooftop… His mother says, “I drank throughout the pregnancies of all four my children, but with Smallie I drank more than with the others.”
– Mail & Guardian

south_africa_FASD
 
Documentary on FASD: Call Me Mental

This short documentary on FASD features several people associated with MOFAS, the Minnesota Organization on Fetal Alcohol Syndrome.  The video was created as part of a collaboration called Call Me Mental, which is composed of artists and clinicians who want to change the attitude toward mental illness.  This video showcases the challenges of living with an FASD through the personal stories of Alex and Martin.

call_me_mental
   
Researchers Discuss FASD
and Criminal Justice

Amy Salmon, executive director of The Canada Fetal Alcohol Spectrum Disorder Research Network (CanFASD) says, “We know that people with FASD are overrepresented — both as offenders, but also as victims — within the justice system.”
– Regina Leader-Post

 

legal_canada
   
Special Olympian with FASD
Burns Up the Track

“It's a hot day and runner Andrew Peterson is burning up the track. It's another training session for one of Indiana's best middle distance runners. But for the special Olympian, his journey to the top has been more like a marathon than a sprint… Andrew suffers from fetal alcohol syndrome, which limited his cognitive capabilities. But Andrew's father Craig says the disability has not limited his son's success on the track.”
– WTHR 13 News

andrew_burns_track
   

RESEARCH

 
Alcohol-related Injuries in Young Women Skyrocket, Study Finds

“The number of women [in Australia] presenting at emergency departments with alcohol-related injuries is increasing at an alarming rate, a new national study has found.  Between 2005 and 2012 the number of women who arrived at hospital with these kind of injuries increased by 44 per cent compared to 30 percent for men.  The sharpest rise in these presentations was in girls aged 15 to 19.”
– The Sydney Morning Herald

 
Key Findings: State Actions to Adopt Newborn Screening
for Critical Congenital Heart Defects

“CDC’s Morbidity and Mortality Weekly Report has published a new study looking at state actions to adopt newborn screening for critical congenital heart defects (critical CHDs) using pulse oximetry – a simple, non-invasive way to measure the amount of oxygen in a newborn’s blood.”

 
   

OTHER NEWS   

 
   
Mother Who Drank Through Pregnancy Speaks About Her Journey to Sobriety

“Sarah Colwell... is now 18 months sober after decades of alcoholism… She admits to drinking heavily throughout her first pregnancy, often getting through several bottles of wine a night… Today, Sarah says that the relationship with her family is better than any high she ever found through drinking.”
– Daily Mail

 
Updated “Healthy Baby” Booklet Series Released

The FASD Center for Excellence has released an updated version of their How to Have a Healthy Babybooklet series. The series consists of three booklets; one for men and one for women who have a friend or loved one who is pregnant, and one for providers who work with pregnant women. Each booklet provides useful guidance for preventing FASD by supporting women in remaining alcohol-free during pregnancy. Click the tab under “booklets” to view.
 
My Gluten Journey Through Pregnancy, Life

“The idea of "going gluten-free" is everywhere. But what do we know about the disease behind the diet? Celiac disease affects an an estimated 1 in 100 people world-wide. Research is now looking at this disease's effects on a developing baby during pregnancy. This month's MotherToBaby Blog author, Julia Robertson, CPM, takes an evidence-based look at this disease during pregnancy and provides a personal account of her own experience battling celiac.”
 

 

REPLAY   

 
Watch NOFAS Recorded Webinar:
Mobilizing the FASD Community to Take Action

The webinar is presented by Sara Messelt, Executive Director of MOFAS, Minnesota Organization on Fetal Alcohol Syndrome. The webinar provides a step by step process for mobilizing community members to take action to prevent FASD and stand up for those who are living with an FASD.

WATCH NOW.
 

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EXPLORE 
 

Webinars

NOFAS Webinar:

Daniel Dubovsky: The Interface of FASD and Co-Occurring Issues: 
Essential Considerations"

June 24, 2015. 2:00 PM ET

The webinar will be presented by Daniel Dubovsky, MSW, LSW, FASD Specialist  

Many individuals with an FASD have co-occurring mental health and other issues. 

​This presentation will identify mental health issues in individuals with FASD, discuss why those with FASD have to be approached differently in education, treatment, home, and other settings, and will examine strategies geared to the recognition of what is causing the behaviors that we see.
 
Criminal Justice and FASD Introductory Webinars
Part 2: June 23 – June 24

This research-based FASD Curriculum Infusion Package (CIP) was developed to be integrated into existing undergraduate-level criminal justice courses and beginners-level in-person/online workshops.

 

 

FASD Events

Here are some upcoming events in the FASD Community: 
 
FETAL ALCOHOL & OTHER NEUROBEHAVIORAL CONDITIONS: Understanding & Application of a Brain-Based Approach 
July 9-11, 2015. Portland, Oregon. “This session provides information about FASD and the effects of alcohol and other drugs on behaviors of children, adolescents and adults."

MILE Instructor Training 
July 23-24, 2015. Atlanta, Georgia. “The Math Interactive Learning Experience (MILE) program is a learning readiness and math intervention program for children with FASD."
 
Association for Medical Education and Research in Substance Abuse (AMERSA) National Conference November 5-7, 2015. Washington, DC. “This year's theme is "Integrating Policy and Research into Teaching and Practice." 
 

Call for Presentations: MOFAS FASD Matters Conference 
November 19-20, 2015. Brooklyn Park, Minnesota. MOFAS is looking for presentations.

 

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